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  This book is dedicated to my amazing mother, Beverly Harden, who fills the world around her with beauty.

  And to Alvin Sargent, who inspired me to write in twenty-minute stretches.

  And to my remarkable children, Eulala, Julitta, and Hudson, without whom my stretches would have been interminable. Your grandmother is an extraordinary woman.

  fuubutsushi: Japanese (n.) the things—feelings, scents, images—that evoke memories or anticipation of a particular season.

  Prologue: My mother’s flower path

  A mother is the truest friend we have, when trials heavy and sudden fall upon us; when adversity takes the place of prosperity; when friends desert us; when trouble thickens around us, still will she cling to us, and endeavor by her kind precepts and counsels to dissipate the clouds of darkness, and cause peace to return to our hearts.

  —WASHINGTON IRVING

  WASHINGTON IRVING, THE AUTHOR OF the beautiful quote above, also wrote the wonderful short story “Rip Van Winkle” about a man who goes to sleep in the Catskill Mountains for several decades, and when he wakes up, the world around him has drastically changed. He has slept through the death of his wife, the growth of his daughter, life has transformed around him, yet he has no memory of the passing of time. I read that story as a kid, and hated it. Beautifully written, yes, but what an unbearable loss it seemed.

  My mother too has spent many wonderful days in the Catskill Mountains while visiting my family on our property in upstate New York. She has played with my kids, canoed on the lake, planted in the garden, and slumbered on the hammock. Unlike Rip Van Winkle, however, my mother hasn’t slept through life’s momentous events. In fact she has participated fully in the growth of her children, the death of her husband, the births of her grandchildren, and all of the miraculous moments that life has gifted her, but she also has no memory of the passage of time. She has Alzheimer’s disease. I will never stop yearning for her to wake up and simply need an update on the last twenty years, rather than an update on her entire life. In this book, I do for my mother what she can no longer do. I remember.

  My memories are not fact. Science says our memories change each time they are recalled, and that no two people’s memories are the same, even if they are recalling the same event. Memories are affected by emotion and perspective. As one of five children, I am grateful to have shared so many wonderful childhood experiences with my siblings, but I know these don’t necessarily translate into duplicate memories. So these memories are mine, of my adventures with my mother.

  This is not a disease where one can “make lemonade from lemons,” there is nothing good about Alzheimer’s, and I resist even a nod toward accepting its ravages. But I will say that my beautiful mother has managed to teach me, even through the destruction of her capabilities and creativity, that there is such a thing as indestructible spirit. Pursue your dreams, now. Be in the moment, now. Fill your head with good loving thoughts, now. These are gifts from my mother, learned over the years, but especially poignant as the one place she lives the most fully is in the “now.” She cannot remember the past. She cannot imagine the future. But she is fully aware of the now. Through a daughter’s eyes, I share her stories in hopes of keeping her legacy alive.

  Grief and loss have cycles, like the seasons. Sometimes loss can spur the planting of new seeds and give birth to a creative rush. Sometimes, however, loss can crush a seed, or force it to lie dormant for years. My mother and I were to experience both of these as we embarked upon the journey for this book.

  In December 2003, our lives were about to turn upside down. Mom got on a plane, returning from a great stay at my home in the colorful Catskills to her homeland of Southlake, Texas. She had been busy filming her hoped-for idea of a show—we would call it The Flower Path—and in it she would take people all over America (indeed, the world) exploring various exotic flower gardens and occasionally arranging an ikebana flower arrangement, as she had learned how to do so masterfully when Dad was stationed in Yokohama, Japan. While Dad was at sea, Mom, perhaps to stifle her boredom at raising five kids, had taken a Japanese flower-arranging class and discovered an outlet for her spirit.

  She had learned that the roots of ikebana were over a thousand years old, and were associated with the the ritual offering of flowers by monks to Buddha, and so the ideas surrounding ikebana were about spiritual harmony. She was told that by placing an arrangement in her home, she could transform the space into one of spiritual reflection and beauty. That certainly sounded appealing to an often single mother of five rugrats all under the age of eleven! She also learned that ikebana was used to mark the seasons, and so, with each arrangement, she celebrated the seasons and events of our lives. She discovered that ikebana is both a spiritual ritual and a fine art, just like painting or sculpture, and that the arrangements follow specific rules. The most important rule being that ikebana flower arrangements form an assymetrical triangle, and the three main stems of the triangle are called shin, soe, and hikae, meaning heaven, earth, and man.

  In wonderment at this art that so majestically captured the entire universe in its philosophy, she curved the gentle line of shin and thought of galaxies, she slightly bent the soe line, and meditated on Mother Earth, and as she placed the last line, the hikae, she thought of mankind, and vowed to preserve the beauty of our natural world. With this cosmos as her guide, she wove chrysanthemums and lavender, pussy willow and hydrangea, roses and driftwood into abstract triangular arrangements. She planted them in ceramic vases of various sizes, bright orange and black, flat and round or tall and crystal, square or modern shapes. She used the kenzan, a metal pronged flower holder, to weigh down the arrangements, spiking the slanted cuts of the calla lilies and laurel branches into its sharp prongs, and what emerged was a piece of Mom herself. Something so stately and lovely and complicated, something so wonderful and full of emotion, a flower arrangement so expressive that it often seemed to undulate with the toil of my mother’s particular day, and beckon to me to simply sit, and stare.

  I came to think of these arrangements as living sculptures, though, in truth, they weren’t really alive. Yet, at the same time, they were alive. The branches were still green, the velvet catkins not yet dropped from the willow, and some flowers had yet to bloom and open, causing the arrangement to transform. The Stargazers had yet to crane their creamy necks to the sky.

  So, that fall Mom and I were excited to be collaborating, and eager to bring these arrangements and their philosophy together in a flower book and a television show. We were filming in the glorious rust-colored Catskills. It was late October, early November, and Mom had been pulling actor’s hours trying to create a ten-minute “pilot” for her garden show, The Flower Path. I was producing and writing with her at night, and in the morning we would don our various caps and set about the day, sometimes being makeup artist or prop master, vase puller or vase creator. My then husband, Thad, would review the day’s shots and scope light and locations. Mom was arranging flowers she had gathered on the land, or brought in from the New York flower market. She was tramping around the three-hundred-acre property, drinking in the crisp oranges and yellows and red colors of East Coast fall that she missed so much. Early rising at 6:00 a.m. to
canoe down to the battered marsh, sneaking up on the beaver dam as the mist slowly rose on the flat and placid surface of the lake, and laughing because in the stillness she actually heard a beaver fart. I can’t think of too many people who can claim as much. She was excited, walking down to the dam in Hunter rain boots and a brown Driza-Bone, reaching for the furry cattails that would be featured in an arrangement we would shoot later in the day. We filmed all of it, Thad and I. I did Mom’s makeup and fed her the lines. Thad captured the beautiful images and landscape, and my lovely mom.

  I fully supported the possibility of a show, but I was surprised when Mom began to express concern about her memory. She would quietly say to me, “Something is wrong. I’m afraid I’m forgetting the simplest of things.” She was very private and didn’t want anyone to know. Mom had always said she wanted to grow old with a sharp mind, so memory loss was one of my greatest fears for her, too. I tried to dismiss her concerns when I was with her—I certainly hadn’t seen anything unusual in her behavior—but I worried that this seed of frailty would prevent her from really being able to carry a show.

  For the most part, however, we were in good spirits. I was pregnant and spinning pots in clay-covered overalls and a bandanna, Mom was arranging flowers, the weather was cooling off as November settled in, and we felt the possibility of a bright future—a new beginning for Mom, who had spent the last many months mourning the loss of my father. The Flower Path would be a much needed spring awakening, and what better time to plant the bulbs than fall?

  Dad had died in 2002 and took with him a trove of pain, and a trunk of love, that he had shared with his beautiful bride, as he so often called her. He had suffered for many months with congestive heart failure, and Mom and my sisters had tirelessly cared for him both at home and in the hospital. He was the toughest man I ever knew, a navy captain and battle commander of ships, and it seemed impossible that a little bacteria he had picked up in the hospital, MRSA, would finally take his life. But it did. It was a punch-in-the-gut loss, his death. He was smart, funny, artistic, brave, domineering, bawdy, and very sentimental. In many ways, my parents were polar opposites, Mom the delicate Dallas lady, Dad the rough and tumble El Paso cowboy turned naval officer. But they were also the yin to each other’s yang. There is a moment that perfectly sums up my father. Once, in high school, I was heading out on a date. My father insisted that the young man who was to take me to the movies come in, shake hands, and pay his respects to the father of the house—no curbside pick-up for this officer’s daughter! However, at the very moment my date arrived, Dad was in the middle of listening to the opera La traviata on the stereo, and he was leaning back in his armchair, swirling his brandy, and waiting in anticipation for one of his favorite arias. “Sit down!” he commanded. We glanced toward the kitchen to see if Mom would save us, but she was busy loading the dishwasher, so we did as we were told and sat on the couch awkwardly, not daring to speak—the room was silent except for the opera. “Listen to the counterpoint,” Dad instructed. Then he began translating the Italian: “piacere . . . amore . . . amore, now this . . . ,” he threw a piercing look right at us and said, “This . . . is about pleasure, and love.” My date hunched down deeper into the couch. He wasn’t prepared to hear my father talking about love or pleasure. I’m sure it almost seemed a setup. He scooted several inches farther down the couch, away from me. Dad got quieter as the aria approached. “Here it comes . . . here it comes . . . annnnddd.” He was now quite literally mouthing the words, attempting the tune, softly, in a sort of accompaniment with the opera singer. He began conducting, his hand swirling the empty air, the other hand swirling the brandy, all the while fully reclined in his armchair. “Annnnd . . . here it is!” His baton hit the down beat and the aria began. Dad’s head now fully arched backward and tears were streaming down his face. My date took a sidelong look of desperate confusion at me, but there was nothing we could do; there was certainly no escape, so the three of us sat in the den and listened to Maria Callas fill the air with spectacular song while my dad conducted and sang along. I could see Mom standing still in the kitchen, her head tilted to the side, listening. When it was over, Dad lumbered out of his reclining armchair, wiped his tears, and bellowed, “That’s the best Goddamned aria I’ve ever heard!” Those three words have perhaps never been put together before: best, Goddamned, aria, but there it was, the soldier and the artist, in one sentence. “Nice to meet you, lad! Carry on!” Dad said. “Love you, honey,” Mom chimed in, and we were sent on our way, with a little bit better appreciation of music and Maria Callas. That was my dad, always learning, always teaching, and seemingly indefatigable.

  But by the end of his life, he had been sick for a long time, and had become weak and fragile—and in pain. He was practically a shell of himself, reduced to tubes and hospital beds and homogenous gowns. Far from the navy captain we all knew so well, he was almost unrecognizable. So it was also a terrible, bittersweet relief, his death. I felt guilty to be grateful that he was no longer suffering; I kept hearing his voice, “Pull yourself up by the bootstraps, Marcia Gay.” It was hard to let him go.

  Mom numbly made her way through the funeral. She sat with composure as the honor guards draped the flag over his coffin, and then pride gave way to tears as they ceremoniously folded the red, white, and blue into a triangle and handed it to her. Finally, as the volley of shots burst forth, so too did her grief. Many empty weeks followed. Feeling an aching loss of companionship, stumbling over disrupted patterns, shocked at habits not necessary anymore, and lonely for purpose and partnership, Mrs. Beverly Harden tried to piece together her past, and look forward to her future. “Step over the cracks; step back into your life,” she told herself. She turned to her children, and to her garden club, and to her flowers.

  So this leafy air and wood-smoked smell of the iron stove in the pottery studio, this filming and belief in her talent and in the possibilities of a show, this driving companionship that was enjoyed when people worked and created together, was a fuel of gold for Mom, and for me, too. I wanted her to do well. I wanted to help her have a season of blush and rush and highs and work. I wanted her to come home exhausted at the end of the day, sated with accomplishment. I wanted her to meet someone, a dapper sober man, and have sex, slow and romantic and hot and fast. I wanted her to have a fantastic, lively last twenty years.

  The memory loss was a nagging concern, but the burn of it only drifted around the edges of reality at this time. So we could put it off while we worked on our show, and Mom was to return to Texas to come up with twelve months’ worth of arrangements so we could write a calendar flower book called Beverly’s Blooms that we would market along with the show.

  She got on a plane to return to Dallas–Fort Worth, and she went home to a quiet, dark house in Southlake. She turned the lights on one by one and prepared for bed, then got the call that no one wants to get. The call that began with “Are you sitting?” The call that broke her heart, as she learned that my brother’s children, Audrey Gay and Sander, had tragically died in a fire in New York, along with their mother, Rebecca, my brother’s ex-wife. Silence. Grief. A black hole. At the center of this chasm of despair sat my brother. Bearing, bearing, bearing unbearable loss. Mom returned to New York, the family gathered one by one, and nothing has ever really been the same since. Audrey and Sander were two of the most beautiful children, inside and out, that I have ever known, and their brutal deaths shattered our entire family. It was a devastating loss that we are all still processing, and probably will be processing for the rest of our lives. What I will say, however, is that now, at the center of this tragic loss, no longer sits my brother; he stands. He is a fierce survivor, and over the years his determination to heal has shone a light for all of us. With strength and resilience he has moved forward. He has heroically rebuilt his life and shown that the human heart is capable of much, and that the human spirit grows toward love.

  But healing is a long, complicated, and uncharted road. Unexpected loss turned, f
or me, into abject fury. Furious that the sun continued to rise. Furious at my helplessness. Furious at my sorrow. The show idea soon washed away, slowly disappearing, like a forgotten spill on the counter. Gone.

  Over the last few years, my mother’s Alzheimer’s disease has mimicked that evaporating spill. That’s what the memories seem to do, evaporate. One minute a person’s face, or the function of a spoon, is known. The next minute, it has disappeared and is replaced with confusion, or frustration, or amusement. Language tumbles out in no particular shape sometimes, words intersperse that at once make sense but don’t. There is a stealthy, cowardly, dangerous protein in my mother’s brain neurons that is malfunctioning, causing the toxic buildup to remain in her brain’s neural cells rather than being washed away.

  In science photographs, this protein often looks like an unruly, tangled flower, but it is not a flower. It is a weed called tau. It covers the path of neural connection like a weed run wild, slowly choking the path of memory. It is this toxicity that seems to be the cause of Alzheimer’s, and though mice have been restored to memory in Australia with sound therapy, to date there is no cure for humans. Millions of men and women suffer this barren brain devastation, and the brutality of it enrages me. Rich, fertile minds, PhDs and scientists, plumbers and dancers, doctors, presidents, inventors, teachers, and firemen. Minds that gave birth to life-changing devices and ideas, minds and bodies that raised children and said prayers, and grew old hoping to sit around a fireplace, cozy in an overstuffed couch with their children, slicing into turkey and mashed potatoes, catching up on lives, sharing memories—these minds . . . these people . . . are now deprived of the validation of the memory of their lives. They don’t remember who they were. Their grandchildren will never know who they were. The histories of these minds become muted, evaporated, and exist only in the storytelling and memory of family, friends, and children.